Samantha Barber

Samantha is an experienced chief executive and board member in the not-for-profit sector with specialisms in governance, communications and income generation, and has influenced policy through high level engagement with MPs and national bodies such as NICE.  She has worked in the rare disease field for the past five years, with senior leadership roles at the Batten Disease Family Association, the Tuberous Sclerosis Association and currently Gene People (formerly Genetic Disorders UK). Samantha is a member of the ABPI Patient Advisory Council. She achieved a Distinction in her MSc in Voluntary Sector Management from Bayes Business School. She holds membership of the Chartered Institute of Fundraising, Chartered Institute of Public Relations and the Chartered Governance Institute as well as being a Fellow of the Royal Society of Arts.

Samantha’s career is based in the not-for-profit sector, and she has worked in a wide range of charities, from the very small to large household names. This is complemented by a number of board roles. She is currently as trustee of Bexhill Heritage Society and, additionally, a Grants and Support Committee Member of the Chartered Secretaries’ Charitable Trust. She is former Chair of Amber Housing and previously a board member of the Royal Air Forces Association and RAFA Housing.

A cool head in a crisis and someone who gets things done, Samantha believes in making every day count. She excels in creating exceptional results from colleagues and enjoys achieving more than is thought possible.

Currently Gene People is seeking to expand their Patient Organisation Partnership Network and their corporate partnerships and Samantha is happy to receive connections.